Support Groups: Conditions and Diseases: Facial Differences

Apert Syndrome  (8) Cleft Lip and Palate  (27) Craniosynostosis  (2) Langer-Giedion Syndrome  (1)

Parry-Rombergs Syndrome  (4) Smith-Magenis Syndrome@  (3) Stickler's Syndrome  (3) Treacher Collins Syndrome  (4)

• AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
• Beneath the Surface - Offers support and understanding to individuals of facial difference.
• Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
• Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
• Children's Craniofacial Association - Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
• The Craniofacial Society of Great Britain and Ireland - Information about the society, which is a multidisciplinary forum for specialists.
• The DRM WebWatcher: Facial Differences - A Disability Resources monthly guide to online resources about craniofacial differences.
• FACES: The National Craniofacial Association - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
• Foundation for Faces of Children - Expert information for families and health care professionals about craniofacial conditions.
• Johns Hopkins Center for Craniofacial Development and Disorders - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
• Let's Face It USA - A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
• The Personal Side of Craniofacial Differences - Personal accounts of living with craniofacial conditions, and related webrings.
• Sincere Meditations - Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
• Support Works Online - Resources to find or form support groups related to facial difference. Information on medical research.
• XP Support Group - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.